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February 2019 Newsletter

 

Hello and welcome to our February Newsletter.  Below you’ll find information on…

  • Some useful resources
  • Debbie’s ROARsome progress
  • Upcoming events for February and March

Some Useful Resources
Our staff are always looking out for useful resources and sources of information that could be helpful for the families we support and there’s a couple we’d like to share with you this month.

Up first is What? Why? Children in Hospital. They make videos and leaflets to inform children and families about hospital procedures.  They’ve resources for over 50 procedures including MRI/CT scans, X-ray/Ultrasounds, blood tests, sleep studies, inhalers, allergy testing, ECG and EEGs. You can find out more and see the resources at the links below.  Remember that your Project Worker may also be able to help you and your child prepare for medical appointments, treatments and tests, just get in touch with them to discuss.

www.whatwhychildreninhospital.org.uk
www.Facebook.com/wwcih
www.youtube.com/WWCIHcharity

Secondly, there’s now a Facebook group set up by the City of Edinburgh Council to share information and news with the parents and carers of children with disabilities. This includes information about holiday activities, out of school activities, self-directed support and other helpful information. Search for the group name below to request to join the group.  It seems to be proving a quick and simple way to get questions answered and concerns addressed.  There’s also a wealth of practical parent knowledge to be accessed here.

Parents and carers of children with disabilities in the City of Edinburgh

City of Edinburgh Council are also hosting an Activities Showcase event at Braidburn School 6-8pm on Wednesday 27 February. Around 30 organisations will be showcasing the activities and supports that they offer to families including out of school activities and health and well-being support. This event is open to all families with children who have additional support needs. Those confirmed include The Action Group, LAS, Edinburgh Leisure, EDG, FAIR, VOCAL, Thistle Foundation, Mindroom as well as us. Refreshments will be available.  Come and say hi to Callum and Pete.

 

ROARsome Progress

We have been working with Debbie and her family since September last year. Her mum describes the challenges they faced when we met them.

“Debbie had no way to communicate. She was always screaming and crying out and we had no understanding of what she needed or wanted.”

The staff team working with Debbie at nursery felt signalong was a good way to support her communication and help her understanding. Through getting to know Debbie’s favourite games, items and activities we started working on teaching Debbie to use the signs for her favourite things so she could ask for them.  We’ve worked closely with nursery and involved Debbie’s parents in each step of the process.  They are increasingly confident in practicing signalong with Debbie in between Tailor Ed visits.

“We’ve had lots of input from Pete who has a great hospitable approach.”

Debbie is now able to make several signs independently to ask for her favourite things; ‘jump’, ‘tickles’ and ‘putty’.  And her vocabulary is continuing to extend so she can ask for other things she cares about including, ‘bubbles’, ‘balloon’, ‘ball’ and for her mum to sing her ‘row your boat’. This has had a big impact on her whole family. As well as helping Debbie express what she needs we’ve also helped Debbie learn to follow direction from others, making it easier for her parents to keep her safe and do more together.

“Having signs has been immensely helpful.
We are happy, confident, and not nervous or isolated anymore.”

Excitingly, Debbie has recently started to vocally request alongside the signs she’s using.  It’s been amazing to hear Debbie speak her first words.  If you’d like to join Team Tailor Ed and support our work with children like Debbie please click here…  http://tailoredfoundation.co.uk/donate/team-tailor-ed/

 

EVENTS

Dad’s night
We are planning on meeting at 7:30 pm on either Thursday the 21st or Tuesday the 26th of February for a pub quiz or a few games of pool somewhere in central Edinburgh. If you’re interested please complete the doodle poll (link below) and leave a comment indicating if you’d prefer ‘pool’, ‘pub quiz’ or ‘either’.
Alternatively, you can email Pete or Callum directly (pete@tailoredfoundation.co.ukcallum@tailoredfoundation.co.uk) or call the office (0131 624 8970) to let us know you can come along or if you have any questions/suggestions.

If you would like to be added to our dad’s mailing list for information on events like these, please email pete@tailoredfoundation.co.uk. These are informal relaxed gatherings and a chance to meet with other dads who are raising a child with autism. A chance to enjoy a drink, as well as a catch up with Tailor Ed Project Workers.

https://doodle.com/poll/hfzumtibq4e4gm8n

Autism Friendly Play Session (Open to all children with ASN)
Our regular autism friendly play session at Time Twisters will run on Wednesday February 27th from 4pm-6pm. Time Twisters is at Unit 5, Catalyst Park, 2B Bankhead Drive, Edinburgh EH11 4EJ.

These sessions are held to create a less busy play session for children and families who may find it difficult to access mainstream provisions.  These sessions are closed to the general public but siblings and friends are welcome to attend. A member of Tailor Ed staff (usually Pete) will be present at these sessions.

These sessions cost £5.25 per child (adults enter for free). For families who want to attend but need help with the cost, we have a small budget available for this.
Please email contact@tailoredfoundation.co.uk or call 0131 624 8970 for a form.

Workgroup – Zones of Regulation (For Tailor Ed families)
This workgroup will be delivered by Kate and Callum over 3 sessions on the 5th, 12th and 26th of March from 10am till 1pm at Tailor Ed’s office (11 Maritime Street, Edinburgh, EH6 6SB).

The Zones of Regulation is an approach to support the development of emotional regulation and is integrated in to the SCERTS model.  We’ve been exploring this approach and implementing its principles over the last year and we’re now keen to share our learning with families who may find it beneficial.  Please get in touch to book your place (contact@tailoredfoundation.co.uk or call 0131 624 8970) or ask your Project Worker for more information.

Mum’s night
Mum’s nights are informal relaxed gatherings providing a chance to meet with other mums who are raising a child with autism.

Our next event is on Thursday the 7th of March, meeting at the Newsroom at 8pm for their pub quiz.  Please let us know if you plan to come.  You can either email Aliki (aliki@tailoredfoundation.co.uk) or follow the EventBrite link below.

https://www.eventbrite.com/e/mums-night-out-pub-quiz-tickets-56333271331

If you would like to be added to our mum’s mailing list, where we set dates and plan what to do for events please email Aliki at the address above or call the office on 0131 624 8970.

Coffee Morning
Aliki will host our coffee morning on Thursday 28th of March from 10am until 12.  This will take place at the Well café (at the Methodist church, 25 Nicolson Square, Edinburgh EH8 9BX).  Sean Bell, Senior Manager within City of Edinburgh Council for Children With Disability will be joining us.

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